The Allergy to Isothiazolinone, Methylisothiazolinone and Chloroisothiazolinone Facebook Group

I have recently been invited to join a Facebook group devoted to the problems raised by isothiazolinones in general, and have been very happy to do so.  If you are interested in it you can find it here.

https://www.facebook.com/pages/Allergy-to-Isothiazolinone-Methylisothiazolinone-and-Chloroisothiazolinone/307128722674171?fref=nf

It looks like it is a good resource for people with this problem.  

I am afraid I haven’t made myself universally popular on it by writing a post opposing the proposal by Denmark to ban methylisothiazolinone in cosmetics.  In fact one member went so far as to wish this blog to be unavailable, which I thought a bit uncharitable.  For some reason I wasn’t able to reply – I guess it is some technical issue since they would hardly invite me one day and ban me the next.  But until things sort themselves out I’ll post my response here – and delete it when I can put it where I originally intended.

Colin Sanders Hoping for my blog to be down is mild compared to the person wishing an MI allergy on me elsewhere on the net this morning.  I was quite happy to allow contrary comments putting other points of view – including yours – so I your ill wishes seem a little uncharitable if you don’t mind me saying so.

But even if you don’t agree with what I am saying, I think you will find that the problem with MI is not that people don’t take it seriously, it is that almost nobody knows about it. If you want to get a debate going on the subject you have to acknowledge that this is a problem that affects relatively few people. I am not in a position to make a very precise estimate of its incidence, but based on some numbers I have worked out from sources I can’t make public I don’t believe it can be more than one in a hundred thousand.

To look at it another way with data I can share – If you use the BBC’s rule of thumb that every letter represents the views of 100 people, then the 350 or so comments I have received on my blog from the US and UK (and a few from the commonwealth) might be expressing the opinions of perhaps 35,000 out of a population in excess of 300 million. (I know that this is hardly better than guesswork.)

One more bit of evidence for you – the media love a scare story and have run with MI on a couple of occasions. They haven’t kept it going as a running story. I suggest that this is because they get relatively little response.

The reality is that if you want to make it newsworthy you should welcome almost any mention of the issue anywhere by anyone, even if they aren’t saying exactly what you would like them to say. My blog is pretty modest in its impact, but even that is better than nothing I would suggest.

2 thoughts on “The Allergy to Isothiazolinone, Methylisothiazolinone and Chloroisothiazolinone Facebook Group

  1. Dana Todd

    Hi Colin, I’m not sure how you were getting banned from my page- it’s a public Facebook page and I rarely delete things unless they are spam/inflammatory. I didn’t see anything other than the one post you made. Are you sure it was on my page? We are having a very civil debate on your points. Perhaps you are confusing it with another Facebook group, there is one closed group that is specifically for UK victims (search “Methylisothiazolinone victims” on facebook).

  2. Colin Post author

    I’ll try again Dana. It was probably some kind of glitch, it was simply refusing to accept any comments. I’ll have another go.

Leave a Reply